Everything is relative. We all have people to look up to, and to look down on.
Last night I did a gig for a very good friend, Liam Smith. It was a charity fundraiser to raise money for the Rett Syndrome Research Trust (http://www.reverserett.org.uk).
Rett Syndrome affects girls from around their first birthday, just after they have learned to walk or say a few words and begins to drag their development backwards.
Over time, those who have learned to walk often lose that ability as well. Loss of motor control sets in, essentially locking these girls into bodies that won't work, leaving them without the ability to make purposeful movements. Most girls with Rett Syndrome survive into adulthood, becoming increasingly more disabled over time. Invariably, they need one to one, 24 hour a day care for the rest of their lives.
There is no cure for Rett Syndrome.
Liam's daughter Louise has Retts. She came along to the gig last night with her mum, Julie, to say hello before we started. And every time I see the three of them together, I'm overawed and humbled by their strength and love for one another. Retts affects approximately 1 in 12,000 females. And in that sense Louise is one of the unlucky ones. But to have Liam and Julie as her mum and dad who care her for her so much, whose love is obvious in everything they do, who work tirelessly to fundraise and raise awareness... she's the luckiest girl around.
There's lots of work being done to reverse Rett Syndrome at the moment, which is why there is a real push for fundraising. You can donate here: http://www.justgiving.com/rettresearch/donate
Everything's relative. Thank you Louise.
This blog is about bringing up The Boy. He's 12 years old and autistic. It's written by The Dad. It's my words, my view. Other people will think differently and have different opinions. Good.